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愛在生命缺口 行向圓滿之旅:全職照護「側畸症合併複雜先天性心臟病」患者媽媽的心路

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愛在生命缺口 行向圓滿之旅:全職照護「側畸症合併複雜先天性心臟病」患者媽媽的心路
Product Code:
389430
Model:
9789866664823
Product by:
元氣齋
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Product Information

ISBN: 9789866664823

出版日期: 2014-08-01

作者: 張瑛娟

裝訂: 平裝.單色印刷.400頁.

 

  欣宜罹患先天心臟病,合併『無脾症』、內臟反位等嚴重異常,
  急診、進出醫院如家常便飯。作者一肩扛起照護重任,
  創記錄地將愛女拉拔到二十餘歲;母女深情,躍然紙上。

<推介本書>

  作者的小女兒欣宜九個月大時,意外發現罹患了「側畸症合併複雜先天性心臟病」,除了心臟異常外,還合併「無脾症」與肺動脈狹窄、全肺靜脈回流異常,而且內臟反位。這類疾病患者通常生不永年。

  為了延續生命,欣宜歷經三次開心、三次開腦等大手術,經常進出加護病房;因中風、癲癇、暈眩、血栓、嚴重感染、痛風…而送急診、住院更如家常便飯。一歲半時因醫療失當、腦部嚴重缺氧而全身癱瘓,後來雖搶救成功,智力卻停留在兒童階段。作者身為母親,一肩扛起重擔,每天幫忙洗澡、刷牙、按摩……,還要忍受其突發的脾氣,無怨無悔。

  好不容易拉拔到二十餘歲,仍無法挽回愛女突然撤手歸去的事實,讓做媽媽的哀痛欲恆,心情久久無法平復。

  本書為作者翔實記錄其女兒從發病到過世百日的心情故事,令人動容。

愛在生命缺口 行向圓滿之旅:全職照護「側畸症合併複雜先天性心臟病」患者媽媽的心路
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Shipping Information
ZoneWeightDelivery Fee (RM)
West MalaysiaFirst 2.00 kg5.30
West MalaysiaAdditional 1.00 kg2.12
East MalaysiaFirst 1.00 kg12.72
East MalaysiaAdditional 1.00 kg12.72

ZoneOrder Price Range (RM)Delivery Fee (RM)
West MalaysiaAbove 39.00FREE
East MalaysiaAbove 79.00FREE

 

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